Oklahoma Rare Disease Summit
The Hues for HOPE Oklahoma Rare Disease Summit provides Oklahoma families a rare opportunity to share their experiences with local providers. The Summit will include Keynote and breakout sessions for providers, patients, and caregivers.

Respite Vouchers
Healthcare is expensive, and there are even more out-of-pocket costs when living with a rare disease. Many Oklahoma families have been waiting years to move up on state-level waiver program waiting lists for respite care. Hues for HOPE provides respite vouchers of $1,000 to ten families annually impacted by a rare disease. We already have a waiting list of 15 families in need of vouchers. Our annual vouchers are a small step toward filling the needs of hundreds of families waiting for state services.

State and Federal Advocacy 
Rare disease patients and caregivers have unique advocacy needs and stories to share about their experience with rare diseases. Hues for HOPE is the only group convening patients and caregivers to participate in local, state, and federal advocacy programs. Hues for HOPE advocacy efforts and connections with state and federal legislators in Oklahoma through partnerships with the National Organization for Rare Disorders (NORD) and the EveryLife Foundation for Rare Diseases encourage system change through legislative advocacy.

Art + Music Therapy 
Our art and music therapy programs for Oklahoman families facing rare diseases fill a need for social connection and provide a space for the emotional and mental processing of trauma inherent in battling a rare disease. Hues for HOPE has longstanding relationships with local art and music therapists.

TeleECHO 
Hues for HOPE, Inc. has partnered with Oklahoma State University Health Science Center’s (OSU-HSC) Project ECHO program to initiate a pilot TeleECHO project focused on rare disease education and research, treatment, and awareness. Rare diseases are a public health crisis, and understanding the complexities of the research, diagnosis, treatment, and impact of rare disease diagnosis is paramount for physicians, allied healthcare professionals, and other research and medical professionals.